I can’t believe its the last day of Diabetes Awareness Month. When I set myself the task of writing a post a day it felt daunting. How was I going to come up with something to say every single day about diabetes? Turns out it’s not that hard. When you live with diabetes 24/7 there’s always something to say!
That’s the thing about the passage of time, it’s a human construct. We’ve decided based on a calendar we’ve created as to what time, day and month it is. Have you ever wondered what time it is on the sun? Timeless.
Living with diabetes is like that. It never ends. I’d like to think there’s a cure around the corner, but I’m realistic. For now the management tools we have available are enough. I’ve added yoga, ayurveda and a primarily plant based whole food, organic diet. I use every peer support group available and do my best to give back to the community. That’s the cool thing about living with type 1 diabetes I’m not alone. In every country around the world I know people just like me thriving.
At diagnosis I isolated myself and lived with guilt and shame until it became imperative that I educate myself about my condition. I still can’t believe it took me six years to do that. It shows how much the internet and knowledge around the condition have shifted in the last decade. A very good sign.
With such positive changes in the way the general public and the diabetes community perceive diabetes I can only hope and pray that the situation around insulin pricing also changes for the better. No one should have to pay for their life.
Living with diabetes certainly isn’t boring, it’s a never ending kaleidoscope of unpredictability that put’s me on the razors edge. But I’m up for the task. It’s given me a strength I never knew I had, a conviction to make a difference and a willingness to let go of my ideas of how I think things should be.
Living with a chronic illness is more than just rising above a condition. It’s about living life to the fullest without preconceived notions, other people’s standards or idealised projections.
Yesterday, somewhere above Antarctica I celebrated my diaversary, the day I was diagnosed with diabetes. 11 years ago my life took on new meaning. At the time I had no idea why or how. I was stunned, shocked and miserable. I can honestly say that 11 years later I am the happiest I’ve ever been.
My life didn’t take a turn for the better just because of diabetes, at diagnosis my marriage was also undergoing serious strain. Diabetes forced me to get real about what was and wasn’t working in my life. Anything that contributed to stress had to go.
I didn’t heal all at once, rather it happened in stages. I started by changing my diet, eating more whole foods, ditching leftovers, eating more consistently. I added Ayurvedic regimes like daily self massage, herbal tonics, sipping hot water throughout the day and making sure I was heading to bed before 10 pm. I added daily meditation and pranayama to my yoga practice, activities, like flower mandala creation, long morning walks and time to reflect. I had a space in my house where I built an altar. A place to remind myself to be grateful each and every day for life and all its gifts.
Eventually my marriage ended and my son moved to Melbourne and it was time to sell our family home. That’s when I packed up and moved to Goa. At that point just two years post diagnosis I didn’t know that I was living with type 1 diabetes, I still thought it was type 2, or some sort of mistake. All the health practitioners I went to see insisted it couldn’t be diabetes. So I went to India hoping for respite, or even a cure.
The cure came after I met my husband, John and as I mentioned in a previous post when I discovered the profound teachings of Atma Vidya, Self-Knowledge. Being given the gift of seeing beyond my condition and circumstances as an individual changed my life permanently. It was the turning point for every single moment in my life where I had tried to lay blame. Like the idea that I had brought diabetes on myself, that there was something that I had done wrong to ‘get’ this disease either real or imagined.
I learned that taking responsibility for every action and reaction isn’t some sort of cosmic destiny, it’s being a grown up. There is no reason ‘why’ I live with diabetes. It is what it is. It’s up to me how I live with it moving forward.
So here I am 11 years later living a life I could only have dreamed of. So to celebrate this momentous day I say thank you. Thank you to diabetes, for my life.
As I am just 24 hrs out from travelling again I thought I would share another post I wrote for Beyond Type 1. I am a well seasoned traveller, but geez travelling with all my gear sends me bananas. This time we will be away for 6 months, which means I am carrying 6 months worth of needles, CGM’s, insulin and test strips. So much stuff that my husband has to carry some in his suitcase and carryon as well. If you are curious to know my top travel hacks for travelling with diabetes keep reading.
“Stuff your eyes with wonder, live as if you’d drop dead in ten seconds. See the world. It’s more fantastic than any dream made or paid for in factories.” – Ray Bradbury
I live between three or more continents in one year, teach yoga internationally and I’m a Type 1 diabetic. This means I have to travel regardless of my health condition. Is it easy? No. Do I enjoy it anyway? Yes. Recently, I participated in a twitter chat to share people’s experiences around flying with diabetes. It gave me a chance to share some of my personal insights — how I use yoga to stay balanced and to inspire others to feel more confident about taking to the skies.
I carry on me …
long and short-acting insulin in Frio wallets
a letter from my doctor
ALL MY FOOD!
I also check ahead to make sure that the country I am flying to has access to the type of insulin I need and that I can get a hold of test strips. I google for everything. It’s probably obsessive, but I want to minimize my stress as much as possible.
Before I was diagnosed, I felt free to go just about anywhere and since my diagnosis, I haven’t let diabetes stop me — I’ve just adapted. Being diagnosed as a LADA Type 1 eight years ago, my onset was slow. For the first six years, traveling meant making sure I had all my own food with me and only staying in places where I could cook for myself. When I did go out to eat I always called ahead. I was managing my levels by staying as low carb as possible and had quite a few food sensitivities, so sometimes eating out was a tough call. I always thought that when I went on insulin things would get tougher. I was wrong. Insulin has actually made traveling so much easier.
Instead of trying to use food and exercise to stay in range — nearly impossible when you’re stuck on a plane for 16 hours with airline food — I can cruise through the trip with my once-a-day shot of long acting insulin. I’m not on fast acting yet, so I can’t comment on what it’s like to fly and bolus. But I’m convinced that traveling with your own snacks, not only for hypos, but for your own sanity, absolutely helps you to feel better when you land.
Today is World Diabetes Day and to be honest I’m flat.
The fire emergency here in Australia combined with higher blood sugars have kept me from my usual enthusiasm. But it’s not just that. It’s hard to put a positive spin on diabetes all the time.
All I can say is my daily yoga practice pulls me out of the doom and gloom. It reminds me that as much as I like to get lost in the details around my health management it’s never going to be perfect. Control is necessary but there has to be some wiggle room. Giving myself a hard time isn’t productive. I’ve learned to relax in the tougher poses, to breathe deep and find stillness. These mini lessons are perfect metaphors for the ups and downs of this disease. And believe me I need that right now.
Today marks the birthday of pioneer Frederick Banting and as such celebrates the discovery of insulin in 1921. Before 1921 they didn’t even know what insulin was. Every time I think of this I’m gobsmacked. 1921 is not that long ago yet I take so much for granted when it comes to all the available medication and tech. Here in Australia there is subsidy for our medication and equipment. I am stunned that this isn’t the case in other countries. No one should have to pay for life saving medication!
Luckily there is an initiative out there to help those in need. Its called Type 1 International and their mission is to support local communities by giving them the tools they need to stand up for their rights so that access to insulin and diabetes supplies becomes a reality for all.
Please join me today on World Diabetes Day in supporting this wonderful organisation.
Yeah so diabetes is no picnic. I think I’ve pretty well established that in the last 10 blogs. There are however so many ways yoga can help. Working with a strong focus for the mind through sound and imagery is one. When we give the mind something to do and draw it out of its habitual need to identify with thoughts, our sense of individuality is suspended leaving us with SELF, the nature of which is peace, contentment, oneness or more aptly put, YOGA.
I learned the beautiful meditation in the video below from my teacher Alan Finger when I was living in NYC. I invoked it quite often, especially after being in 9/11. I found that taking my feelings and releasing them back to source was a profound way for me to come to terms with all the emotions that seemed to be piled up on top of each other as my body worked to release the shock.
My diabetes diagnosis was also another moment where I worked with this meditation. I was actually terrified at diagnosis, felt ashamed and alone and had no idea how I would recover from something that I knew had no cure. These feelings of helplessness dissolved into the simple focus of the practice and soothed my worried heart.
If you live with diabetes, or are just needing something to soothe and support your nervous system I invite you to join me for the meditation below
Setting myself the task to write something every day for 30 days about diabetes to spread diabetes awareness is definitely daunting. I live with diabetes for 365 days a year and deal with it 24/7 so it should be easy to articulate that right? In reality the way I deal with diabetes is deeply private.
After spending 6 years ignoring it and then spending 4 years shouting about it via writing a book and being a fierce advocate through social media, it’s been interesting to spend this past year taking a break from the need to externalise my experience.
In 2019 I set a goal to lower my Hba1c, heal some of my underlying digestion issues and be brave when it comes to taking Insulin. I started 2019 using the Diabetic Health Journal, created by yogi and diabetes health coach Lauren Bongiorno, with incredible results. Writing down daily goals, things I was grateful for and staying accountable made a big difference. My Hba1c went from 6% to 5.6 % in 6 months. If you’re not sure what that means it’s like dropping your cholesterol levels or blood pressure. Moving it from a pass to a win.
I also went into hyper drive with my digestion, adding different supplements, bone broth and more variety into my daily meals. I worked on stored trauma with network spinal analysis and neuroimmunology sessions. Finally I made sure to keep up a daily walk and my twice daily yoga practice.
Making a concerted effort to shift some deep seated patterns has been an interesting process. I didn’t necessarily make great strides or have major revelations, instead I settled more into accepting what is.
“What is” might not be what I want but if I can accept it that’s a pretty good place to be. It’s how I dealt with diagnosis after fighting it for so long and pretty much how I manage my finicky digestion and volatile blood sugars and everything else that comes my way.
My latest go to phrase for everything is, ” It’s not up to me” That’s not about not doing everything I can to stay balanced. It’s about understanding that I don’t know the recipe of creation. Letting go of needing to know, enjoying the gifts I’ve been given and trusting that whatever comes is perfect, goes a long way in helping me manage my condition.
I never expected to be diagnosed with diabetes but now that I have been I can honestly share it’s a blessing in disguise.
More on that tomorrow #NDAM #DiabetesAwarenessMonth
Diabetes! The one word in the english dictionary I never really wanted to focus on. I can remember the day I was introduced to the word by my high school girlfriend. She wore a medical bracelet around her wrist and ate sugar free candy. She told me it wasn’t much fun having it, but little else. It wasn’t until my own diagnosis, thirty years later that I understood the gravity of the burden she carried. Living with diabetes isn’t like living with a slightly annoying flatmate. It’s a 24/7 alarm bell that never stops ringing.
After diagnosis I tried to ignore it, big mistake! For me ignorance has meant nerve damage and digestive issues that don’t abate. But I’m not bitter. I’m grateful.
This month is #DiabetesAwarenessMonth. I’ll be posting every day sharing how yoga and mindset has helped me to navigate this journey. I’m not sure how I’ll fare, it’s a big task but I’m going to give it a shot (no pun intended).
So why should everybody know about Diabetes?
Well for starters 425 million people worldwide have the condition. That’s a lot of people. And that’s not counting those with undiagnosed or misdiagnosed type 1 and type 2. Diabetes is one of the fastest growing epidemics in the world. It’s also a disease with no known cause or cure and with ridiculously high priced medication in a country, like the US. Managing diabetes also has no set treatment rules. I.e Insulin is not a cure! It’s like managing Jello. There’s a whole lotta wobbling going on.
Lately I haven’t been waving my diabetes flag here on the blog or elsewhere. For personal reasons I needed to jump off the bandwagon for a while. I worked pretty hard for most of the year on getting my numbers in range. For non diabetes friends, that means I’ve worked towards having normal in range blood glucose levels. When I achieved my goal halfway through the year I took a writing break. It’s been a good exercise for me in looking at the topics which really matter to me. It’s also given me a chance to step back from all things diabetes and just be.
Whether you know about diabetes, live with diabetes or know absolutely nada being is seriously cool. Being means being okay with the ups and downs. Being is all about taking each day as it comes. Without doing anything being is always happening anyway. So being conscious of being takes it to a whole new level.
After quite a lot of being…I’m feeling like doing again…Phew!
I hope you’ll join me this month here and on my social media channels. Do comment below if you’d like me to post about something specific like what postures I choose to do, what I eat to manage my levels or anything else.
This post may contain affiliate links to products I trust. Please read Disclaimer for more info
So, this I found out is a thing… A cleaning hypo. I thought it was just me. Not long after picking up a mop, running the vacuum cleaner or even just sorting and tidying my closet I get the tell-tale signs. Skin crawling, thoughts scrambling, confusion and an overwhelming sense of fatigue. Doesn’t everybody feel like that when they clean? Apparently not!
I’ve got friends who tell me they get high on the buzz of a hoover and the sweet smell of lemon floor wax and don’t get me started on how Marie Kondo and the Konmari craze has taken over everybody’s households.
But seriously…having to stop and drop a glucose tab in the middle of my cleaning foray is super inconvenient. Like who wants a low when your packing and tidying for a trip away? Or worse at the storage unit when you’re supposed to be a helpful hand to your husband?
It wasn’t until I happened to see my diabuddy Christel Oerum’s post about having to treat a hypo in the middle of vacuum session that I realised, this happens to everyone. According to Christel, the reason why vacuuming affects blood sugar so much is that it’s basically steady state cardio. The heart rate comes up a little and you end up moving around quite a bit even if you have a small place. She suggests making sure not to have too much insulin on board ( IOB) before cleaning.
My problem is that I’m in such a routine with my insulin dosing that I have trouble planning ahead. I.e cleaning in the morning when I have dawn phenomenon would be better than an after lunch declutter session.
The other thing I’ve noticed with a cleaning hypo is it lasts for hours. No other form of exercise seems to do that for me. If I was keen to clean I could actually use that as a great form of blood glucose control.
Move over Yoga, lets scrub, mop and vacuum the sh..t out of everything right?
Fuggedaboudit! I’d rather roll out my yoga mat, do a leisurely sun salutation, cross my legs and meditate.
Wishing everyone a super wonderful start to September
It’s tragic, that moment when my inbox flags that someone’s unsubscribed from my newsletter. I know it’s not personal, but it is.
Feeling the inevitable gut punch when I post a newsletter is something I’m getting used to. It’s why I find it harder and harder to send them out and truth be told I’m a little envious of my unsubscribers. I’d like to do some unsubscribing myself
Like unsubscribing from Type 1 diabetes.
It’s 6 am. I roll out of bed and pad to the computer, As I watch the myriad of newsletters come in the subject, “LOW BLOOD SUGAR” is staring me down. I click through the dropping numbers and glucose tabs to the fine print. Who wants low blood sugar in their inbox anyway? Not me. With a quick click, I’m done. PHEW!
One less newsletter to worry about until breakfast.
The inevitable ping reminds me my next newsletter has arrived. This time the subject line reads, “BOLUS for BREAKFAST”. Again I scroll down to the teeny-weeny lettering and click the unsubscribe link, only to be led to a page which offers me numerous other ways to resubscribe
Bolus for Lunch ✅
Bolus for Dinner ✅
Basal for Bed ✅
Inject for a High ✅
I go through the process of unchecking all the boxes and BOOM no more bolusing for anything!
I feel an incredible sense of relief until I realize, I’ve got another mail. That annoying one where I have to manually write to the person and ask them to personally unsubscribe me. The subject reads, “Unknown Reason for High”.
As I write a diatribe to the person for not taking me off the list I find myself confessing, “Don’t you know I’ve tried everything already? Why can’t you just make sense? It’s no use showing up if you’re just going to be irrational.”
Blah Blah Blah
While I’m at it I rage unsubscribe to everything.
A bird flies overhead, the Sun rises and sets. The wind blows through evergreen trees and I feel calm again. I’ve tamed the beast and lived to tell the tale.
Now wouldn’t that be nice…
With great respect…
P.S if you’d like to subscribe to my newsletter go here
I’ve never been someone to feel at home in my body. For as long as I can remember I’ve dealt with feelings of discomfort. The feeling that everything that’s supposed to work in the usual way doesn’t. Digestion, breathing, and vital organs. I’m pretty sure the whole shebang was caused by the sudden death of my mother when I was 11, but I also remember a time before that when my mom threatened to use an enema bag on me when I refused to go to the toilet. I was terrified that my body wouldn’t do what it was ‘supposed’ to do.
Feeling frustrated and disconnected from one’s body isn’t unusual. It seems to be a general trend especially now with autoimmune and chronic health conditions on the rise. When we are conditioned to be comfortable living through our smartphones and laptops. Where productivity and quantity matter more than quality of life. Where we’ve forgotten the vital ingredient for existence. A body.
Stop, take a breath, think. How would you be reading this blog if you didn’t have a body, how would you be able to eat your lunch, without a body? How could you do anything without your body!
As a dancer from a young age, I grew up understanding that my body was an instrument to be pressed and moulded into shape, to be moved into submission. Starved and folded, propelled and pulled my body had to be perfect. In my eyes, this seemed impossible. There were so many imperfections from flat feet to short legs to rounded bits where there should have been bones. So as a teenager I went to war with my body. Expecting the impossible.
Learning to suppress my feelings about my body became the norm for me. As long as I didn’t pay attention it wasn’t there. I longed to feel more comfortable and healthy, but it always felt out of reach.
And then I found Yoga. Yoga changed my life and my relationship with my body. When I first tried the practice I felt awkward, embarrassed, it was nothing like a plie at the barre or a jump on center stage. It was precision, alignment, breath, extension. A feeling of swoosh and whoosh as organs came back to life. It was release and relaxation. Tension easing. And the biggest takeaway was the malleability of the muscles and ligaments. For the first time in my life, my body felt fluid, I literally changed the shape of my muscles.
When I went to an audition for a dance company the year after I started practicing yoga the choreographer mentioned how my dancing had changed. How I moved more gracefully and my physique was lithe. It was nice to be acknowledged but it also terrified me. What if I couldn’t keep it up or worse what if my body failed me altogether.
Many years later it did. Type 1 diabetes takes no prisoners. I have never felt more let down by my body than on the day of my diagnosis. It hurt, it really did.
Climbing out of a hole is no easy feat. I know I’m not the only one who lives with a chronic illness or has had to face the reality of a body that isn’t functioning as it should. It takes courage to see things for what they are. To let go of blaming oneself or feeling ashamed of doing something that may have caused the breakdown.
I am reminded of a story told by W. Timothy Gallway
“When we plant a rose seed in the earth, we notice that it is small, but we do not criticize it as “rootless and stemless.” We treat it as a seed, giving it the water and nourishment required of a seed. When it first shoots up out of the earth, we don’t condemn it as immature and underdeveloped; nor do we criticize the buds for not being open when they appear. We stand in wonder at the process taking place and give the plant the care it needs at each stage of its development. The rose is a rose from the time it is a seed to the time it dies. Within it, at all times, it contains its whole potential. It seems to be constantly in the process of change; yet at each state, at each moment, it is perfectly all right as it is.”
Learning to see the body for what it is, is the first step in coming back to body love. It’s your vehicle, your temple, the altar upon which you are able to experience the wonder of creation. It has given you 5 senses to enjoy your surroundings. It has given you a heart to love, lungs to breathe. The ability to experience pleasure, sensuality and the depth of connection. As a woman, you gestate and nurture life, as a man you help to create life. Everybody is unique, a love bomb exploding with passionate expression. Whether healthy or ill, you the enjoyer occupy the body, one of a kind and yet inexorably part of the whole. Take yourself out of creation and the whole creation is incomplete. Watching the dancer nothing gets added to the dancer in the dance.
Loving others comes easily, not loving ourselves can seem like the core issue. I truly believe that in a life with chronic illness trying to ‘love” ourselves can feel too much like a concept. So instead of beating yourself up about not loving yourself enough or that you lack self-love. Try this simple visualisation practice below….
You can record this in your own voice so you can practice it without reading it.
Take a comfortable seat and close your eyes. Imagine that you are walking in a forest. In the middle of the forest, you see a clearing. Step into the clearing and just be present with all your senses alert. Notice what’s in the clearing. What do you see? How does it make you feel? Now gaze intently at the circle of trees surrounding the clearing and imagine that behind each tree is a role, a persona, something you tell yourself about your diabetes or chronic issue, something you tell yourself about your body. Imagine calling those identities, thoughts and roles to come out from behind the trees and call them back to you. As they come to you embrace them. Recognizing them for what they are thoughts, ideas, identities, beliefs, projections. Things that you’ve given energy to. Call them back and let them dissolve in your heart. You are not the beliefs, or ideas about your body. You can never be what you have. You have thoughts about your body. Your thoughts cannot be you. As you recall all these fractured parts of yourself notice how it feels to embrace them and integrate them. Keep calling out to the identities behind the trees until there are none left. Once each one has found its home in you. Imagine yourself filling from your toes to your crown with pure golden light. Pure gold, impenetrable light. Feel your body, strong, resilient, calm and centered. Notice how this makes you feel. Keep feeling the strength of this gold light feeding every cell, bringing you back to total body harmony. Take as long as you need to bask in this light. Then when you are ready. Gently open your eyes and come back to normal waking consciousness…
May the light of who you are be the reminder that gives you the courage to meet every day exactly as it is.