Why prick when your can scan?

Disclosure: I’ve just returned from the two-day #dx2Melbourne blogging event hosted by Abbot, the makers of the Freestyle libre, a flash glucose monitoring technology which has the tag line, “Why prick when you can scan?” I was sponsored by Abbott to participate in the program. They paid for my flight to Melbourne, put me up in a hotel, gave me two free sensors, a reader, and a goodie bag. I am in no way obligated to write about my experience at the event and the opinions and views expressed here are my own.

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I was first introduced to the freestyle libre flash glucose monitoring system last year by my CDE and Endo. They thought, that being a LADA and still producing some insulin, that it would be interesting to see what sort of data they could glean from seeing my levels plotted on a graph over time. They were also curious to see how my yoga practice and low carb diet would affect things.

The two-week trial went like a dream. My levels stayed in range, I hardly knew the sensor was there and for the first time since being diagnosed I slept through the night. When I went back for the evaluation they asked why I thought my levels had been so good? (because truly they’ve NEVER been that good)

All I could think of was that my fear of going low had been taken out of the equation. Overall I was less stressed and more confident.

After going through quite a few sensors and having a range of experiences, both great and not so great since the initial trial, I was excited to attend the #dx2Melbourne event and hear more about the product. I was also very curious to meet other bloggers who live with type 1 diabetes. In fact, I was so excited that I felt like one of those kids who are about to meet their pen pals for the first time at camp.

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I think I might need to devote a whole other blog to what it felt like to meet some of my diabetes heroes for the first time but in a nut shell… it was inspiring, intense, reassuring and heartfelt. Each person manages their life with diabetes in a unique way. Our discussions were robust (a word that everyone used to describe our passionate feelings) and there was definitely a lot of strong opinions. What I loved most was that none of us shied away from expressing different viewpoints on any given topic.

Being new to the discussion (most of the bloggers were at the #dx2Sydney event when the freestyle libre launched last year) I found myself stepping back, taking a breath and pondering.

One thing that stood out strongly was that because we are bloggers in the diabetes space we have to be aware of what’s happening with diabetes not only in Australia but globally.

That awareness inspires advocacy.

Most people living with diabetes aren’t going beyond what doctors are telling them or seeking out communities and or more information.  It certainly didn’t occur to me when I was first diagnosed. In fact, I remember one doctor telling me NOT to google diabetes and that I could live normally as long as I took insulin, ate well and exercised.

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When Greg Johnson the CEO of Diabetes Australia spoke during the event he disclosed that the issues at the founding of the organization in 1957 are the issues we are still dealing with today, “Insulin does NOT solve the problem.”

That’s why gatherings, support groups and events like these are so important. I can’t begin to express what it feels like to sit at lunch with people who casually check their blood sugar, and then take their shot. No one judges or questions because what we do to manage our diabetes is part of our every day lives.

So besides making lots of new dia-buddies and normalizing my life with diabetes, this event did have great takeaways that I’d love to share.

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First up was Mahmood Kazemi, senior director of Abbott global medical & scientific affairs. I’m not really a statistics gal but I was impressed when he shared that after gathering unidentifiable data from over 55,343 readers (the device you scan over the sensor to find out your BG level) an average of 16.3 scans a day affords better glucose control and lower A1c’s.

He also mentioned that things like ingesting large amounts of vitamin C, exposing the sensor to sunlight, or fast changes in environment like going from a dark to light space can throw off sensor readings. Abbott takes sensor faults seriously and sometimes they even reverse engineer a faulty sensor.

There were some questions from the group about scar tissue build up around the sensors, allergic reactions and whether Abbot will be recommending other sites, besides the backs of the arms.  Apparently, they haven’t tested accuracy “officially” beyond the arm sites but anecdotal evidence suggests that the accuracy remains consistent wherever you put it.

One of our Bloggers, Matt was keen to know when the sensor would have an alarm Mahmood reminded us that the device is not designed to be CGM, it’s a different technology with a different purpose.

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As a group we discussed the pro’s and cons of blogging…and later we talked more with guest speaker Isabelle Skinner about online personas and how the digital community can bring people together to create change. We had another robust discussion about the difference between coercion and saying things like, “this worked for me to help me manage my diabetes.” And what it means to be a trustworthy genuine source of information online.

A highlight of the event was heading into the Melbourne CBD to learn how to create great images for our blogs as was the live webcast on the emotional side of living with diabetes with Lisa Robins who specializes in diabetes clinical psychology.

The big question?

Did we think it would be useful to have professional psychological support on diagnosis (YES!) and what are ways that we stay positive with diabetes.

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Something I shared was how gratitude had really helped me. Focusing on what’s working rather than what’s not and giving myself a break…

Which included not being offended when the planned yoga for diabetes class with the group early Sunday morning was canceled.  I didn’t get a chance to ask but am curious to know why no one wanted to attend the free class. The lack of attendance has sparked a determination in me to address the issue of ignorance around this word YOGA and what people feel it represents.

More food for that in blogs to come….

In the meantime, I would highly recommend checking out what my fellow bloggers had to say about their experience of the event.

Renza of Diabetogenic

Frank of Type 1 Writes

Matt of Afrezza Down Under

Drew of Drew’s Daily Dose

Georgie of Lazy Pancreas

Kim of 1 Type 1 and Oz Diabetes Online Community

Melinda of Twice Diabetes

Tanya of The Leveled Life

Helen of Diabetes Can’t Stop Me

Alana of The Enlightened Diabetic

With great respect… Rachel

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P.S.  What if there was an easy way to feel better, have extra confidence and be more relaxed about managing your diabetes?

Yoga absolutely helped me and I’m convinced it can help you too

Join me on September 1, 2017 for my free yoga challenge

“Better Diabetes Management in 7 steps with Yoga”

The wonder and magic of a life with diabetes

Woohoo! It’s here! Diabetes Blog Week!

For the next 5 days I’ll be writing on a specific topic along with other diabetes bloggers, sharing how I navigate the world of diabetes. Below is the first topic and my corresponding thoughts.

Tell us about some good things diabetes has brought into your life that you never could have expected?

The nervous system is a delicate thing, tiny fibers that crisscross the body and send signals from your brain to different key areas, telling it to move, breath, digest, feel etc. For some reason nine years ago, mine started to go haywire. Being a long time yogi I consulted my yoga books to see what the problem might be. After months of research, I reached my conclusion.

I was in the middle of a spiritual crisis.

Thinking that I was on the fast track to enlightenment wasn’t necessarily the best approach. For starters, it kept me from questioning my physical symptoms or seeking medical answers. If I had known that diabetes isn’t something you get from poor diet and lifestyle, or that it doesn’t just affect children, I would have dug deeper.

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Back then there wasn’t much awareness about the signs and symptoms of diabetes.  Even now when I tell people I have Latent Autoimmune Diabetes in Adults ( LADA) they scratch their heads and look at me funny.

Finding out that there was a reason for the strange jittery sensations, erratic digestion, food sensitivities, a constant sugary taste on my tongue and the feelings of exhaustion was a total relief. It’s not that I was happy to have diabetes, it’s just that my search for answers caused so much internal havoc, that having an actual diagnosis released the pressure valve.

I cried a lot those first few weeks after diagnosis. It felt so good to let go.

It’s been quite a journey since then and aside from those initial feelings of relief, I spent years trying everything I could to conquer the beast. What I’ve learned though is that you can’t ‘conquer’ diabetes. It’s not a country you can invade and call home.

Am I the proud owner of a life with diabetes? hmmm….it’s hard to put that answer into words…

What I can say is that diabetes has changed me for the better. It’s made me raw, honest and put my feet on the ground.  It’s also motivated me to open up and share through my writing more about what it means to live with chronic illness and spread awareness about the disease.

Diabetes has also inspired me to be deeply grateful. I used to take life for granted. I’d wake up every morning, dive into the day and never stop and think. Wow! I’m alive.

Now, I make a concerted effort to stop, look around me, drink in the beauty of this life and remember…

Life is precious. It’s not a given.

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If you’d like to find out more about how yoga can help you manage your diabetes each and every day check out the rest of my blog and if you’d like to get the first chapter of my book for free go here

With great respect…Rachel

Diabetes Blog week Day 7 Rachel Zinman Yoga for diabetes blog

Continuing Connections

It’s been a big week!  I’ve taught Yoga in Italy and Switzerland and managed to keep up my commitment to blog for Diabetes Blog Week for 7 days.  A first for me as I lead such an active life that it’s hard to commit to doing something, other then my work, consistently and to a topic. So first, a big THANK YOU to Karen Graffeo for spearheading this truly uplifting project.

I have read as many blogs as I could and have learned a lot. The main thing has been to realise that I’m not alone in all this. This was truly brought home last night when during my nightly injection half the insulin didn’t seem to go in. I’d read about it in my LADA support group but didn’t actually understand what it meant until it happened to me. I was completely freaked out when I pulled out the needle and the Insulin squirted all over the bathroom counter. I immediately went online and asked for advice and within minutes people responded. I went to sleep feeling relaxed and reassured.  I reckon the diabetes online community is full of super heroes!

There are two bloggers whom I really connected with this week one was Frank from Type 1 writes . His honest story telling is real and meaningful. I also fell in love with Coffee and Insulin’s writing style and her ability to take us on a journey to different countries while making us laugh! Both these blogs had so many great posts during the week I can’t share just one.

Diabetes Blog week Day 7 Thank you

I want to thank everyone who took the time to read my blog and for commenting and will continue to share my journey with Yoga and Diabetes and to stay on track with regular blogging.

It’s early Sunday morning here in Italy and the last day of our yoga immersion so I better get off the computer and prepare my food for the day…I think I’ll make….Bliss balls just for a change!

With great respect… Rachel