+ acceptance, High Blood Sugar, hypoglycemia, low blood sugar, Make Diabetes Visible, staying positive with diabetes, Yoga for Diabetes, Yoga for Diabetes Type 1, Yoga for Diabetes Type 2, Yoga for LADA Diabetes, yoga mudras for Diabetes
A Soul Crushing Low
It wasn’t 1.8 or 2.5. In fact, maybe in regard to numbers it wasn’t even that bad. But for me 3.3 was absolutely soul crushing.
I’ve had Diabetes for 12 years. In that time, I’ve had lows that freaked me out, inspired determination or forced me to face habits that weren’t serving me. This low, however, was different.
I felt numb, not just numb in my extremities, but numb to everything. My sole focus was watching the minutes tick over on my timer waiting for the sugar to kick in. When it didn’t it was hard to stay calm. Downing even more glucose gummies, resetting the 15-minute alarm and watching my breath were my only allies. My husband held me tightly from behind promising me my blood sugar would come up. “It always does,” he reminded me. “You got this.”
I kept thinking, “Why don’t I have a hypo kit? Why are we so far from town? What if I lose consciousness? What will my husband do? How fast will an ambulance come in lockdown?
I don’t think we talk about our lows enough. Sure, we post pictures on Instagram, express our frustration, tell each other to feel better or commiserate. In the short term it helps. It’s the aftermath that gets me. Like how today not even 24 hours later I’m feeling a subtle anxiety after eating my breakfast or how that rebound high took hours to resolve. Or my feelings about the interaction with my husband during the height of the hypo and shortly after; how hard it was to explain the feeling of being held underwater for 20 minutes, starved of glucose, mind slowing to lead and then how just like that I’m up for air, without really feeling like I’ve stopped drowning.
Photo by Taylor Leopold on Unsplash
Being determined to get it right next time doesn’t always work with so many factors at play. Are my ratios correct? Is my basal set? Was there more fat, less carbs, did the carbs spike or didn’t they? Did I wipe down the mirrors in the bathroom for a little longer than I’d planned? Did I wait too long to eat after pre-bolusing? Did I weigh that last meal correctly? Is my correction factor too low or high? Did my yoga practice make me more sensitive to Insulin today?
Even when I do everything right, it’s like dancing on a tight rope. Turning, extending one leg, teetering, lifting and falling only to land back on the same foot again. I love dancing, but not like this.
After a hypo I usually cry. This time was no different, except maybe wailing was my way of expressing my pent-up frustration in general at being quarantined. I miss my family, I miss the beach, I miss the feelings of certainty and safety. It’s awful thinking that grocery shopping is potentially life threatening or that breathing, laughing and hugging in close proximity is no longer ‘normal’. I’m heartbroken at how many people just five minutes down the road from us have no food, nor adequate shelter in which to ‘social distance’. With all these personal and not so personal things going on most days I feel at a complete loss for anything to say when everyone ‘out there’ is saying it anyway. I know I’m not alone in this.
And it’s hard not to push down feelings of guilt that I am in a beautiful place even while challenged with having a chronic illness.
Photo by Liv Bruce on Unsplash
I often mention in this blog how yoga is my lifeline. Yesterday was no different. Having gone super high after treating my hypo I decided to do a vigorous practice to kick start my metabolism. It wasn’t long before I felt energised, calm and rejuvenated. No matter how bad I feel physically, no matter what goes on emotionally, a simple balanced practice of posture and breathing sets me up for a good night’s sleep and a healthy mental attitude.
In particular it also helped me to put my soul crushing low into perspective. I caught it, handled it and recovered well. It’s all anyone can do.
If you’d like to join me for livestream yoga classes during isolation I’m teaching on Tuesdays and Wednesdays. Entry is by donation with 50% of the proceeds going to our local village for masks, food and medical supplies. Donations can be made via www.paypal.me/yoga4diabetes
Wednesdays at 11 am US East Coast time and 5 pm South Africa Standard Time/Zurich time
With great respect…
+ 9/11, acceptance, breathing for Diabetes, Breathing for Stress Management, exercise and diabetes, Get Creative, Gratitude and Diabetes, mudra for diabetes, Tips for Yoga practice with Diabetes, Yoga for circulation, Yoga for Diabetes, Yoga warm up
Rest, restore and get creative
I don’t think anyone expected to go through what we are going through right now. Who could imagine a situation so beyond our understanding and control. I have been holding back from writing anything here on the blog mainly because I have been spending the majority of my time getting grounded and taking practical steps to be able to self-isolate for an extended period of time.
As someone living with a compromised immune system it’s important that I look after myself. This is a hard one for me. I love ‘being there’ for others. I’ve been reminding myself that ‘being there’ doesn’t have to look how I think it should look. It could be as simple as reaching out to a friend to check in or sharing a positive post, cool recipe, fun activity or what I shared yesterday on Instagram and facebook, a dance on the beach.
Because yoga is my lifeline you can absolutely assume I have stepped up my personal asana practice and am spending even more time working with breathing and meditation. Taking time out to balance mind, body and immune system is essential.
I’ve seen many yoga teachers rushing online to teach yoga. For me it’s not about joining the fray. It’s about doing things that help me to slow down, breathe and be still. I can’t teach when I’m stressed out. I learned this the hard way.
The only comparable experience was when I was in 9/11. On that day and subsequent days, I was a bundle of nerves. The shock that ran through my body was worse than any anxiety I’d ever experienced before. Instead of being able to stop, rest and restore I dove straight back into teaching. I was quaking on the inside while appearing ‘strong’ for my students. Suppressing my fear, shock and many other feelings led to a collapse which affected my immune system, my digestion, my marriage and my ability to parent. It has taken me years to recover and integrate the lessons from that time. Now that humanity is being faced with its biggest challenge yet I’ve been asking myself; how do I want to show up? How can I last the distance? How can I be a leader?
The answer:
Stop, rest, restore, get creative, take my time, dream, reach out for support. Find beauty in simplicity and make sure to play. Then when my cup runneth over teach and share.
So that’s what I’m doing. Being gentle with myself. Not pushing into anything. Not expecting anything of myself.
Just being.
For anyone wanting a little glimpse into one of my daily practices, here’s a simple joint and mobility warm-up series I shared yesterday in our facebook group.
with great respect…
+ 9/11, acceptance, books for diabetes management, climate change, digestion and diabetes, Food and Diabetes, High Blood Sugar, Insulin Resistance, low blood sugar, self love, Yoga for Diabetes
I’m back…
This post may contain affiliate links to products I trust. Please read Disclaimer for more info
My blood sugar hit 11.7 mmol today. It’s been a while. I mean a long while. Since starting Insulin in 2014 and simultaneously going low carb I’ve had excellent control. A high for me was about 9 mmol. In the last two years, even that was pretty rare.
The control I’ve had over my numbers has been directly related to a huge amount of food restriction. A.K.A living on eggs, non-starchy vegetables and avocados and olive oil for the last 6 years. When my husband would ask, “How is your dinner?” my standard reply was, “the same.” I could make breakfast, lunch or dinner in 15 minutes tops. Eating to live, and fine with that. Worth the sacrifice if it meant staying healthy.
Don’t get me wrong low carb works. It totally works. The question is… is it healthy and sustainable? I have been low carb for 6 years so it’s doable but healthy?
Healthy is having a rainbow in your diet. Healthy is as much emotional satisfaction as physical satiation. Healthy is enjoying food, being social, being able to go out and pick something off the menu without guilt or fear. Healthy is putting the meal together and then trusting that what you inject will do the job. I’m not talking eat whatever you want and cover, rather eat whole foods that please the eye and the pallet. Know you are taking in life sustaining nutrients and that your body can take it in, digest it and distribute the energy accordingly.
This is the basis of a yoga practice, absorbing prana from food, the atmosphere, anything you consume. If our own energy is scattered, stuck or overly dogmatic, we can’t absorb prana which in turn builds Ojas, the basis of our immune system.
In Ayurveda diet should be mitahari, which means balanced. Eating whole grains, legumes, fruits, vegetables etc. Everything according to your type incorporating the six tastes of sour, salty, sweet, bitter, pungent and astringent.
Before my diagnosis I was able to follow an Ayurvedic vegetarian diet ad infinitum. After diagnosis I found myself narrowing my diet according to what I felt sensitive to or what I thought wouldn’t cause a high blood sugar. Eventually I was so afraid of going low I stopped trying. I told myself I couldn’t have mung beans or quinoa because it was too confusing to dose for. I couldn’t have fruit because I would spike. My list of excuses was long. My openness and availability to try something new was zero.
In the last few years I’ve started each year with a diabetes goal. In 2018 it was braving meal time insulin (up until then I managed on a split dose of basal with severe carb restriction). In 2019 I worked on healing my gut. My 2020 goal came out of months of feeling helpless around the situation we are facing on the planet and watching two documentaries Cowspiracy and The Game Changers. Discovering that animal agriculture is one of the main contributing factors to climate change and seeing how athletes were able to maintain a vegan diet and increase their performance, made me question what I was eating and why.
To be honest wanting to go vegan was a total heart longing. I’ve never liked the feeling of eating animals (as a kid, I used to pretend to eat my pork chop and when no one was looking I’d push it into a napkin and then excuse myself and flush it down the toilet) so it made sense to stop.
The big question for me was how. How could I make the transition from keto to vegan smoothly? Was it even possible? While I was mulling over the what and how, a T1D friend sent me a PM about a new program she was on which was high carb, low fat and and how successful it had been. She suggested I try it.
I balked at the idea. Then another T1D I follow on Instagram shared his story of going from keto to vegan. His story was inspiring and confronting. I had to ask myself, what was my excuse really? Was I going to be terrified of carbs and insulin for the rest of my life? What was holding me back?
Doing some deep soul searching around these fundamental questions forced me to take stock of the times in my life where I’d faced a seemingly insurmountable hurdle. I reflected on giving birth. That was terrifying, yet I did it. I thought about how I managed during 9/11. How when I thought I couldn’t handle the shock I actually rose above it and made it through. Even after my diagnosis I was able to eventually find a way to acceptance. I also thought about the beach. Here in South Africa the water is beyond cold. Going in takes a certain kind of bravado.
That’s how I decided to approach this new and exciting chapter in my diabetes management. If I didn’t jump in, I might regret it. If I did, hopefully I’d feel refreshed and invigorated.
Five weeks on from transitioning to a plant-based diet. I’ve introduced a huge range of foods, with hardly a hitch in my digestion. The big challenge has been to experiment with insulin to carb ratios to find what works best when. I’ve also had way more highs and lows then before. I’ve had to be courageous while watching that straight down arrow on my freestyle libre. Patient when I see a spike.
My insulin needs have completely changed. I need less basal; more bolus and I am becoming more and more sensitive to insulin. I’ve also had to slowly build my daily carb intake working my way up to about 250 carbs per day. That’s been hard, but I’m getting there. I’ve also rekindled my passion for creating recipes. I’ve made hummus, nori rolls, veggie burgers. I’ve been eating heaven in a bowl for breakfast. Smoothie bowls with dates and figs, bananas and papaya. I now look forward to eating and cooking. I’m excited to try things like beets, leeks, peppers again. I feel like every meal is a party. One I get to have for myself.
The best side effect of my new diet is increased energy and decreased aches and pains. When I step on my mat I feel open, balanced and clean from the inside out. It feels like I’m back.
If you’d like to find out more about a plant based whole food diet check out this brilliant new book, Mastering Diabetes
If you’d like to have more one on one support to make the transition I highly recommend Drew Harrisberg from www.drewsdailydose.com
+ a sweet life, acceptance, Beyond Type 1, Gratitude and Diabetes, staying positive with diabetes, Stress Management for diabetes, Yoga for Diabetes
It’s all attitude baby!
From that first moment I was given a glucometer to measure my blood sugar I thought about success and failure. In fact, I considered my diagnosis the biggest failure of my life. How could a yoga teacher, who’d dedicated her life to living in peak health, be diagnosed with diabetes? I still have moments of absolute disbelief. Like last night during my injection after dinner, I couldn’t help remembering my life before diabetes and thinking… how did I get here?
My diagnosis was a defining moment, so was my denial for the following six years. My capacity to handle my diagnosis was zero. My fight to change it was a ten. Facing my fears, taking medication and starting the process of healing my bruised ideas of who I was and how life should be, was a huge step. Luckily, I took it.
In my world every day is a gift. I see my ability to want something better, my desire to live, as a blessing. What other being in the creation has the ability to desire, to strive and to dream? Humanity has been given the gift of desire, how we use it…that’s up to us.
Living with diabetes has given me plenty of desire. Goals like a normal A1c, constant time in range, accurate use of insulin, healthy exercise, a good night’s sleep, meaningful work, a happy relationship, a place to call home. For the most part I live the life that I’ve chosen and I’m happy.
But what if I couldn’t live that life? How much have and do I take for granted? Including my ability to desire? What about the people who can’t afford their medication, don’t live a stable and comfortable life? It’s very apparent here in Africa how difficult it is to live comfortably with diabetes. Access to technology that supports blood sugar management is only available to those with money and good medical aid. Even the information about diabetes is limited. Most ignore their diabetes and hope for the best. Diabetes is not a condition one can ignore. Eventually one way or the other it gets you. Hence the 24/7 dance we do to stay in range. It’s in the moments that I forget my diabetes (which has happened) that I have to remind myself. Woman…you have diabetes…check your blood sugar!
So what is success? The wisdom teachings from the tradition of Atma Vidya (Self Knowledge) take an empowering track.
Instead of thinking of success as what you have or hope to achieve. Think of success as your capacity to handle whatever life gives you.
Based on our desire’s life will present itself in four different capacities.
- We will get precisely what we expect
- More than what we expect
- Less than what we expect
- The opposite of what we expect
Framing this through the lens of diabetes, imagine…
You decide to have pizza, you estimate the dose, and at the two- and four-hour marks BOOM you’re coasting on a perfect number. You’ve done pizza, before and aced it. You high five yourself because you got exactly what you expected.
You decide to have Pizza, you dose, then have dessert, stay up late binge-watching Netflix and you still have perfect numbers. Way more than you expected. Did your pancreas decide to work again or what?
You decide to have Pizza, dose and woops go high and have to take more insulin at the four-hour mark. The pizza wreaks havoc and for the next day or so you’re rage bolusing and fighting highs. Definitely less than you expected
You decide to have Pizza, you take a bucket load of insulin, or plan a dual wave on your pump to catch the high and for some unknown reason, the whole thing tanks before it even gets started. You’re going low, so low you crash at the restaurant, even worse, the EMT’s have to come and you wind up in the hospital. This is totally the opposite of what you expected! Worst case scenario.
The way we normally see success is in the end result. i.e. dosing goes perfectly. Success! Dosing goes even better than planned…super success. Dosing doesn’t go quite as expected. Damn, almost. Pizza night ends in disaster. What a mess!
Here’s the twist. Think of success as the attitude you take towards getting what you expect, and more than you expect. Instead of comparing a win to a loss. Take a win and see it for what it is.
Let me explain:
Having something go the way you want, isn’t personal. Yes, it may be your past experiences that enable you to dose perfectly. But what about all the factors you can’t control? The amount of cheese in the Pizza, what’s going on with your insulin sensitivity, how much stress is on board and the other 39 factors influencing your blood sugar? As much as we like to think we have the power in any given situation, we don’t. The one thing that is absolutely guaranteed is that nothing is under our control. That includes our existence. Can you claim ownership of what brought you into existence? The only thing we do know is that we exist. But what is existing? That’s a mystery.
When you get the dosing right for Pizza, did you do it? Or was it the dance between you and all the unknowns. We are always dancing with unknowns. That’s the most incredible thing about being alive. We don’t know who we are, how we got here, or what we are doing here. We’re not given a road map at birth as to the nature of who we are. We are taught how to navigate life on a relative level and more often than not we make mistakes. Life would be so much easier with instructions!
Seeing getting what you expect or more than you expect with dispassion, not getting carried away and expecting that to be the new normal builds your capacity to deal with getting less than you expected or the opposite of what you expected. It’s called equanimity. Happy regardless of the outcome. Happy isn’t elation or ecstasy. It’s acceptance.
Whatever I get, whatever life brings, the lows, the highs, the challenges, the frustrations, the blessings the amazing opportunities. They aren’t good or bad. They just are. It’s not about me. Life flows through me and the more I accept what comes without making a judgement. The greater my capacity to deal with whatever comes next.
with great respect…
+ acceptance, climate change, digestion and diabetes, exercise and diabetes, staying positive with diabetes, Stress Management for diabetes, Yoga for circulation, Yoga for Diabetes, Yoga for Diabetes Type 1, Yoga for Diabetes Type 2, Yoga for LADA Diabetes, yoga mudras for Diabetes
A yoga pose for our times
I am at a loss for words. Reading so many friends posts about the bushfires in Australia I notice that some feel guilty. Guilty that they are okay, living in relative comfort while others are suffering so much. Finding it hard to promote their 2020 offerings because who is thinking about that anyway?
I feel the same. That’s why I am grappling with “what next”. One thing I know for sure, the healing benefits of yoga, which by the way are free, work.
Breath, body, mind are free to use as we wish. Our hearts are also free. No one has taken our hearts hostage. It is the incredible outpouring of support and compassion which makes sense when nothing else does.
I’m addicted, dumbfounded and political. Addicted to following what’s happening with a crazy cartoon president. Dumbfounded by our Australian Prime minister whom I’m convinced believes he’ll be saved while the world crumbles. And yes, even though experts might try to convince me that’s it’s bad for my brand to be political and take a stand. Screw that!
I am not happy with the state of things, period!
How do I cope with frustration and feelings of helplessness? My daily yoga practice. It helps to suspend the negativity, the constant identification with the thoughts and stress. Ultimately the practice reminds me, I am not this, not that. But the one in whose presence this and that takes place. It’s not about becoming the witness. It’s about knowing that the feelings of calm and peace are the natural state of every human being. Yoga gives me this insight. Day after day.
Today I want to share with you one simple yoga pose, which has helped me in so many ways. It’s from the Yin Yoga tradition. It’s called Saddle pose and it calms the nervous system. Opens the chest facilitating better breathing and also increases circulation into the legs and feet while stimulating specific energy pathways that link to the stomach and spleen. It also opens and frees the Psoas. If you have tight or muscular thighs or knee issues, this pose might be challenging. There are variations, which I will share in the video below.
Holding this pose for 10 to 15 minutes is a game changer. I can’t even begin to describe how it has helped me in all aspects of my diabetes management. After a long hold I sleep better, digest better and just plain FEEL better.
I hope you’ll join me in this short video tutorial.
With great respect…
I’m absolutely struck dumb by what’s happening at the moment. New year is usually about setting goals in my diabetes management, upping my personal yoga practice and setting out a plan for the year. With my newsfeed and mind consumed with the unbearable tragedy of the bushfire crisis in Australia, the craziness of the presidency in the US and the spectre of the Climate Crisis, yoga is my rock of support.
It was in the aftermath of 9/11 that I learned that having a committed yoga practice could make a difference to how I responded to the crisis at hand. Yes, I made donations and did what I could to help others, but I also recognised I needed to care for myself. As the stress and tension mounted in the weeks and months after 9/11 we had the anthrax scare, the Iraq war and the very real destruction at ground zero. I remember feeling terrified to head out into the throng of NYC to teach. I forced myself to face my fears because I knew that teaching yoga and attending classes would bring me back to set point.
Since that time, I have learned through the deeper teachings of yoga called Atma Vidya that the nature of self is peace. Peace doesn’t disappear. I do. I’m the one identifying with the fear, uncertainty and shock. Yoga helps me to calm down and direct my energy towards what I can do to make a difference. It might be to share on my FB feed an article or story to spread awareness, a physical donation to an organisation, or something as simple and personal as nurturing a seedling in my garden.
Whatever I can do, I need to be calm and grounded to do it. Making decisions out of fear doesn’t work. When everything feels completely out of control, and there is no one to turn to for comfort because everyone is in the same circumstances, there is great support in taking responsibility for what can be done.
“God Grant me the serenity
to accept the things I cannot change;
courage to change the things I can;
and wisdom to know the difference.”-serenity prayer
I consider prayer one of those responsibilities, and it’s something I work with daily in the form of Bhakti yoga, the yoga of surrender and devotion. Another way I take responsibility is to catch myself in the act of reacting to a situation, thought or circumstance.
This is what enabled me to act in the chaos of 9/11. Instead of dissolving into a puddle I took practical steps to cope with the feeling of overwhelm and devastation. What could I do to get our family home and safe? At the time walking over the 59th street bridge was the answer. Now in the midst of an obvious climate and ecological crisis, with Australia in the limelight, I am determined to do my best to take practical steps to be part of a global shift.
When I got married in the 90’s we built our house on an intentional yoga community out of mud bricks. I also built my own composting toilet. We had solar power, rainwater and huge veggie gardens. I had a home birth in water and brought my son up on organic food and a minimum of TV and tech. We spent hours outside in all types of weather. I read to him constantly. We baked and sang and lived very simply.
By Jacob Zinman-Jeanes
Looking back, everything I did in my 20’s and 30’s was a blessing. I was healthy, grounded and idealistic. Little by little though my idealistic bubble began to burst. We needed to use pesticides to poison alien trees on the property, our solar batteries crashed. It was easier to run our new computer and other electrics on mains power. It was more convenient to have an indoor toilet. Cell phones came into being and we all know how things have changed in the last 20 years.
Our advancement seems to have been our undoing.
Going back to basics, starting a garden again, looking at how we can be more self-sufficient, recycling, reusing, reducing and travelling less are all good places to begin. However, there are still millions and millions of people out there who refuse to change their habits. It’s hard not to feel frustrated and helpless. I refuse to let it get me down. Instead I have added them into my responsibility prayers.
“Living one day at a time;
enjoying one moment at a time;
accepting hardships as the pathway to peace;
taking, as He did, this sinful world
as it is, not as I would have it;
trusting that He will make all things right
if I surrender to His Will;
that I may be reasonably happy in this life
and supremely happy with Him
forever in the next.
Amen.” – Serenity prayer
With great respect….
Please watch this very sad yet beautiful tribute to whats happening in Australia at the moment. You can find out more about how you can help the bushfire crisis here
+ acceptance, exercise and diabetes, Gratitude and Diabetes, low blood sugar, self love, staying positive with diabetes, Yoga for Diabetes
Learning to colour outside the lines
This post may contain affiliate links to products I trust. Please read Disclaimer for more info
Yesterday we went for another delicious walk along our wild coastline to a pristine river. This time I was prepared for the inevitable hypo. It paid off. I hypo’d, downed 3 glucose gummies and in 10 minutes was back on track. It was deeply satisfying to know I handled the whole thing without freaking out.
It was in bed this morning having a D & M ( deep and meaningful) with my husband that I realised that managing diabetes is like trying to get good grades. As a kid I worked hard to get an A. I was more of a B+ kind of student but I knew that if I studied hard and went that extra mile I could do better. I liked the feeling of mastering the challenge. It meant getting my head around tricky hard to understand subjects and being rewarded for my effort.
When I go off track in my diabetes management it’s not that it’s the end of the world, or that I won’t survive, its more that the goal I set for myself of staying in range is challenged. Taking my basal shot an hour later, or eating my dinner late, these things won’t make me sick, but they’ll change the landscape of the days to come. Questions like; will I need more or less insulin to manage the change in routine, how will my energy levels be, what should I eat? Things people without diabetes don’t even have to consider. It’s the mental energy needed to dissect the situation that can be frustrating and confusing.
It’s easier just to stick to my routine and forget about it.
Life however needs to be lived in full colour. 2020 for me is all about pushing the edges of my own ideas about management. These long nature hikes are part of it. As is experimenting with when to dose. I’ve taken to dosing at the start of a higher carb meal (I used to dose at the end of the meal) and am seeing less of a post meal spike (duh) and also seeing a flatter line up until my next meal. I may not have as good an A1c as I did mid 2019, but I am seeing flatter lines, less spikes and better overall control.
Learning to colour outside the lines isn’t one of my strong points when it comes to living with diabetes, but I’m giving it my best. When friends and family are along for the ride I am learning that rather than expecting them to understand what I am going though it’s up to me to understand how I react and respond to my situation. If I’m cool with stopping mid walk to treat my hypo than naturally everyone else will be too. My tendency is to feel like my condition puts out other people’s plans. It’s a myth I’m determined to bust.
As I head into my 12th year with diabetes my New Years resolutions are simple. Try new approaches to management, do things that push the boundaries and most importantly put myself first.
Wishing everyone a very Happy New Year
With great respect…
P.s these were the gummies I downed on my walk. So easy and quick, better than glucose tabs overall and actually yummy with no artificial flavours or colours or preservatives. Highly recommend them!
+ acceptance, digestion and diabetes, Food and Diabetes, Gratitude and Diabetes, self love, staying positive with diabetes, Stress Management for diabetes, travel and Diabetes, Yoga for Diabetes
The day I forgot my insulin
Forgetting things is normal. Like forgetting my wallet when I go to the store, or my phone or car keys. It’s usually a hassle and requires some unexpected backtracking, but in the scheme of things forgetting stuff is no biggie. But insulin? OMG! Who knew?
Suffice it to say I have never ever forgotten to bring my insulin with me on a trip. No matter how big or small if my outing includes a meal, I put it in my purse and that’s that. Until the other day. For some ridiculous reason, I forgot it.
And I didn’t realise I’d forgotten it until we were already miles and miles away. The morning had run as usual, yoga practice, followed by cooking my lunch, packing it and loading up the car. We were heading to Knysna, a picturesque town on the Garden Route here in South Africa. I’m not sure whether it was distraction, the fact that diabetes wasn’t number one on the list that morning or what. Once I realised what had happened there was absolutely no way I could forget. I was freaked out and mildly hysterical. Even though my husband encouraged me not to be.
Our purpose driven trip turned into a race against the clock. If I don’t eat my lunch around 1.00 pm my blood sugar tanks. I am not sure exactly why, it’s either the long acting insulin peaking or my own insulin kicking in. Regardless I eat lunch to stop the drop.
As my blood sugar started to tank my husband suggested I eat my lunch. Nope…can’t do that. If I do I’ll go high with no way to bring it down for another 2 hours. The only solution was to fast and eat when I could dose. In the meantime I downed a few glucose tabs amidst a grumbling hungry tummy. I also downed my feelings; frustration, anger and fear.
Fasting wasn’t a problem, but heading to the local bakery to buy Christmas cake was. As I stood in line looking at all the bakery delights I felt defeated. This has been me now for over 11 years. I don’t eat gluten, sugar or dairy because it messes with my levels and my delicate digestion. I don’t usually get upset standing in the bakery line, in fact I don’t care, but today with a perfectly good lunch sitting in the car, fasting and skirting an endless low I was livid. Why can’t I just this once enjoy apple strudel! F…k
As soon as we got home I ate my lunch. It was 3 pm. I calculated that we could still eat dinner at the normal time so that my schedule wouldn’t be too interrupted. Just because I craved normalcy after this hiccup didn’t mean it happened. The most annoying thing about a mishap in routine is that I have no idea how it’s going to influence anything. It’s a total experiment. It’s not just the physical stuff that goes topsy turvy, it’s my emotional responses.
Despite my efforts to use my go to practices for mental and emotional stability, i.e yoga, breathing, meditation and the teachings of yoga (Atma Vidya), I reacted. After lunch I had a tantrum. It made no sense, it was ugly and probably a result of pent up anxiety.
Reaction sucks. There is absolutely no point in blaming others for enjoying life and doing what they normally do. I could have gone to the chemist and gotten some insulin, I didn’t have to fast for the day, I could have stayed in the car rather than gone to the bakery. I could have relaxed and accepted that this sort of stuff happens, people forget stuff, even big stuff. I didn’t. It’s my style to do things the hard way.
It’s been a few days now since my major stuff up and it’s been interesting to reflect. I’ve learned some really valuable lessons.
- When travelling always bring insulin. Put it in purse.
- Fasting works, but it does have after affects. I ended up struggling with lows for a few days afterwards because it increased my insulin sensitivity
- Stay balanced during a crisis. Don’t succumb to hysteria. Put things in perspective
- Be kind! Be kind to one’s self and others. No one no matter how close knows how it feels to live with diabetes.
- Take stock and be grateful! Just 4 hours without access to insulin is nothing compared to someone who can’t afford insulin or lives in a country where access is limited or non existent.
- Never ever forget insulin again!
With great respect…
+ acceptance, exercise and diabetes, Gratitude and Diabetes, hypoglycemia, staying positive with diabetes, travel and Diabetes, Yoga for Diabetes
Preparation, practicality and cautious expectation
Yesterday was the start of my holiday. Piercing blue sky, slight breeze, the swell of the ocean and a day planned walking through the forest to a remote and pristine river. I was excited and frickin scared. I packed my backpack to overflowing with glucose tabs, insulin, lunch, phone fully charged, an extra and accurate blood testing meter and rescue remedy. My husband would have to carry my bathing suit, sarong and water bottle.
I love walking and I do it every day. 20 minutes hits the spot and lowers my levels just enough so that I cruise into dinner steady and in range. If I go beyond my 20 minute cruise I often end up high. Seems like the liver kicks in and releases more glycogen aka sugar into the blood stream.
Honestly, I am not a fan of long hikes. The last time I did one was before I started short acting insulin in 2018. That’s why I was scared. How would it work to walk for more than 3 hours, on a sunny hot day? Would my insulin stay cool? How would I dose for lunch when I knew I’d have to hike up a hill after our planned picnic at the river mouth. So many questions, so many unknowns. While my friends and husband were excited to walk I felt like I was jumping off a cliff.
As much as I use yoga to keep me balanced, it’s these normal everyday things that get me. I can’t take a vacation from diabetes. EVER!
In spite of my trepidation we went. The first hour was awesome. The forest was alive with wild flowers, trees dripping in moss, singing birds and dappled sunlight. I felt connected and alive. Our forest is 50 million years old.
By the end of the 2nd hour we had reached the lookout. My blood sugar was a steady 6.0 mmol. I started the walk with a 1/4 of an apple and didn’t take any insulin to cover. Things were going well. We had to cross the river to get to our picnic spot. On went the bathing suit. With my backpack and shoes held above my waist we waded across. The water was brrr cold. Here in Africa the water is clean and crisp, full of prana, amazing!
As everyone else munched on snacks I pulled out my prepared lunch, enjoying every bite, it was crunch time. Would my usual two units be best considering that in an hour I’d be climbing a steep hill followed by an even steeper descent? I opted for just under 2 units and an extra 1/4 of an apple. Then threw myself in the river, cold refreshing water. So good!
I started the next part of the walk around 5.7 mmol. It took 30 minutes to hit the dreaded low. 3.9 mmol with a downward pointing arrow. I took two and half glucose tabs, while gazing at the most beautiful view in the world. We waited for 15 long drawn out minutes. My friends asked me what would happen if it didn’t come up. I’d take more tabs and wait some more. Waiting is the worst. On the plus side I was so tired from the walk I couldn’t feel the low or my fear. I was peaceful, relaxed and grateful. Grateful for my husbands arm around me, the patience of my friends, and the beauty of our surroundings. My levels returned to normal and we completed the walk. Topping it off with a dip in the wild ocean. It couldn’t have been a better day.
Back at home my husband reminded me, holidays are all about dropping the every day stresses. Time to take a break from normality, hang out with friends, talk about whatever, spend time in nature. I get it, I used to have that freedom, even took it for granted. Since diagnosis I’m a work in progress. I take each day as it comes. I work with what I have without expectation. Rather than define my ‘vacation’ by what everyone else does. I do relaxing my way.
Preparation, practicality and cautious expectation.
Have a wonderful holiday season
with great respect…
+ acceptance, Beyond Type 1, diabetes awareness month, keeping it light with diabetes, Make Diabetes Visible, Yoga for Diabetes
A joy to be alive
I can’t believe its the last day of Diabetes Awareness Month. When I set myself the task of writing a post a day it felt daunting. How was I going to come up with something to say every single day about diabetes? Turns out it’s not that hard. When you live with diabetes 24/7 there’s always something to say!
That’s the thing about the passage of time, it’s a human construct. We’ve decided based on a calendar we’ve created as to what time, day and month it is. Have you ever wondered what time it is on the sun? Timeless.
Living with diabetes is like that. It never ends. I’d like to think there’s a cure around the corner, but I’m realistic. For now the management tools we have available are enough. I’ve added yoga, ayurveda and a primarily plant based whole food, organic diet. I use every peer support group available and do my best to give back to the community. That’s the cool thing about living with type 1 diabetes I’m not alone. In every country around the world I know people just like me thriving.
At diagnosis I isolated myself and lived with guilt and shame until it became imperative that I educate myself about my condition. I still can’t believe it took me six years to do that. It shows how much the internet and knowledge around the condition have shifted in the last decade. A very good sign.
With such positive changes in the way the general public and the diabetes community perceive diabetes I can only hope and pray that the situation around insulin pricing also changes for the better. No one should have to pay for their life.
Living with diabetes certainly isn’t boring, it’s a never ending kaleidoscope of unpredictability that put’s me on the razors edge. But I’m up for the task. It’s given me a strength I never knew I had, a conviction to make a difference and a willingness to let go of my ideas of how I think things should be.
Living with a chronic illness is more than just rising above a condition. It’s about living life to the fullest without preconceived notions, other people’s standards or idealised projections.
It’s a joy to be alive.
With great respect…
+ diabetes awareness month, exercise and diabetes, Food and Diabetes, Gratitude and Diabetes, Make Diabetes Visible, Yoga for Diabetes
My best diabetes hack
One thing I love to do is scour the Diabetes Online Community for diabetes hacks. The best way to deal with all the little and big things that happen when you live with diabetes. Best place to inject, how to dose for pizza, top CGM insertion points, ideal hypo snacks and that’s just a small glimpse into the vast ocean of support that can be gleaned from others who’ve been riding the tiger. At first, a newbie on the scene, I didn’t have any tips or tricks to share. Eleven years on there are definitely some hacks I swear by. If I had to distill my diabetes management into the ‘best diabetes hack ever’ it would be ‘routine’.
Having a consistent routine in place from the moment I wake up means I can relax. I know that I’m going to have my morning long acting insulin at 6 am, my breakfast at 7 am, I’ll be practicing yoga around 8 am, lunch at 1 pm , walk at 4 pm, long acting shot at 6 pm and dinner at 7.30 pm. I think of this set routine as a framework. Anything that happens in between these times is spontaneous, creative and fluid. Having a non negotiable routine creates stability in my blood sugars, a sense of trust that things are taken care of.
Living with diabetes can feel out of control. Having a routine puts me back in the drivers seat. I may not be able to tame the factors that affect blood sugar but I can manage my time impeccably. Routine may be boring for some, for me it’s a balm.
Routine is not just about the timing of shots it’s about consistency of meals, same kinds of foods at each meal. Exercise, a twice daily yoga practice and afternoon walk. Rest, heading to bed before 10 pm and waking at sunrise. These routines are part of in Ayurveda what’s called Dinacharya and are the staples that each Ayurvedic constitution relies on to stay balanced.
As we head into the holiday season it can be daunting to maintain our routines. For me a routine takes the stress out. I’d rather spend my time enjoying special times with family and friends, than try to fit in. It’s taken me a while to get to this. I still need to explain to family and friends why I’ve eaten before the 3 pm Thanksgiving meal, or 11 am Christmas brunch. Knowing that I’m going to stay in range keeps me sane. After over a decade with diabetes it can be so frustrating to have days and days of insulin resistance after eating and dosing at a time that doesn’t suit. Call me boring, fixed…whatever I don’t mind!
Routine is also what’s enabled me to write everyday here for Diabetes Awareness Month. At first it was quite a task and I wasn’t sure I could keep it up. Consistency has been the key. Sitting down everyday to share my inner world with diabetes has been both healing and cathartic. Thank you to everyone who has stayed the course with me. Tomorrow is the last day so make sure to check out the final wrap up for what’s been an amazing month of connection, sharing, awareness and community.
See you tomorrow #NDAM #DiabetesAwarenessMonth
with great respect…
+ acceptance, diabetes awareness month, Gratitude and Diabetes, High Blood Sugar, hypoglycemia, keeping it light with diabetes, travel and Diabetes, Yoga for Diabetes
Sick with Diabetes
Usually I can fly 30,000 miles without a hitch but not this time. I’ve been hit by some sort of bug. Could be an allergy, could be my body trying to eliminate all the toxicity from breathing in smoke from the Australian bushfires or could be I actually picked up a bug. One thing I’ve consistently noticed about myself since diagnosis is that I hardly ever get sick. I know others have mentioned this too. It’s like diabetes gives us some sort of immune super power, where we are chronically ill but never sick. Weird!
I try to avoid exposure to bugs as much as I can. It can make me antisocial. I won’t go to hangout with someone when they have the flu. Getting sick can wreak havoc on blood sugars. Fighting off a bug can raise levels, and having to take extra herbs or medications can lower levels. Even something supportive like Vitamin C can affect the accuracy of the readings on a continuous glucose monitor. Basically a cold or flu is a minefield I’d rather avoid.
When I travel I wear a mask. It’s not pretty and I’m often the only one on the plane who wears one, but it seems to help. If nothing else it gives me a feeling of security. Insecurity rears its ugly head when I am tired, sick and feeling irrational. Same as one of those out of control hypo moments. Brain offline, body shaking, must get glucose now kind of stuff.
Obviously this time the mask was no match for the super bug. Now I’m in that lovely cycle of watching and waiting. Watching how it progresses from excruciating pain at back of nose, to yellow phlegm, to sore throat, waking up every hour during the night, to loss of voice. Where to next? No idea… Such fun!
Meanwhile my blood sugar seems to be staying in range for once. Go figure
And it’s a beautiful day in Africa! Nature is in full force in spite of my gluggy head. A little bird is building its nest in the rafters, the lion down the road is roaring, the natural bush around us is filled with cheeps and chirps and there is a presence and stillness in the surrounding forest and mountain scape that can’t really be described.
Yep, it’s definitely annoying to get sick when you live with diabetes, but it’s also a good opportunity to rest, reflect and appreciate one’s health.
Happy Thanksgiving!
See you tomorrow #NDAM #DiabetesAwarenessMonth
with great respect…
