Staying in range

I’m feeling motivated to get my levels back to where I want them. Not that their not in a good range, its just I know I can do better. At the beginning of the year I worked with the Diabetic Health Journal. It’s a great way to stay accountable, set goals and track patterns. When I was using it my Hba1c went from over 6% to 5.5%. For anyone living with diabetes that’s a perfect number, but really hard to maintain. As much as I know that time in range (keeping my levels between 4-8 mmol) is ideal, there have been a few too many peaks and troughs for my liking. So when I opened the journal and set my goal for the week, I thought I’d try some intermittent fasting.

Intermittent fasting is different to a regular fast. I’m still eating, just spacing out when I eat. The last two days I had my last meal at 7.30 pm and broke the fast with lunch at 1.00 pm. That’s 18 hours between meals. The idea with IF is that it increases insulin sensitivity. It means I assimilate the insulin I am injecting better and blood sugar levels are lower. When I’m really sensitive to insulin I can even reduce the amount of insulin I’m taking which means less low blood sugars events. It’s a win win.

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The only issue for me is I am a huge fan of my avocado and egg breakfast. Day 1 was easy because I distracted myself by going to yoga. Day 2 (today) was harder. I was pretty hungry from about 10.00 am onwards.  I also haven’t seen any concrete results yet. I.e lower levels and increased sensitivity. Patience Rachel Patience…

After I started taking insulin in 2014, I came across a book by Ginger Vieira called Your Diabetes Science Experiment. I read it from cover to cover and learned a lot about the variables that affect diabetes. I learned that even though there are  guidelines and formulas for managing diabetes, it’s not one size fits all. Flexibility and a willingness to experiment are key assets. I’ve been using my yoga practice for years as my personal laboratory to see what my body is capable of. Having diabetes has made things tricky. Sometimes I’m not sure what’s affecting what. Is the sequence or practice supporting what I am doing or is a day of higher or lower levels affecting my practice?

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I feel like I am drawing a giant question mark on a blackboard.

Not having all the answers is something I’ve grown accustomed to.  I was the child that had to be ‘right’ or else. I thrived on competition. That’s why having diabetes has been a bonus in my life. It’s taught me to stop comparing, be kinder to myself and take a gentle approach.  So even though I’ve set a goal for myself to get back to the numbers I feel healthiest at I’m also open to the possibility that where I’m at now is absolutely fine.

See you tomorrow #NDAM #DiabetesAwarenessMonth

with great respect…

rachel

Catching a relax

Today the whole of our shire is blanketed in a smokey haze. The smoke is everywhere. It’s awful and there doesn’t seem to be much respite on the way. Meanwhile life seems to continue as normal…or does it? It’s pretty hard to ignore what’s happening not just on a local but global scale. The word that comes to mind is chaos.

When I think of managing diabetes I also think of the word chaos. Not because I can’t manage it, because overall I do that really well. Rather its the unpredictable nature of diabetes that keeps tripping me up. One day I’m struggling to stay above 4 mmol and the next I can’t get under 9 mmol (in range numbers are between 4-8 mmol). There is no X=Y with diabetes. The pancreas is a strange and elusive animal which doesn’t like stress. And how many times have I been stressed without even knowing I’m stressed? A lot.

The opposite of stress and what the pancreas loves is relaxation. Recently I’ve been catching those moments when I’m relaxed. Noticing a nice deep relaxed breath, a feeling of calm, soft tingles through the body, mind slow and centred. Every time I feel a ‘relax’ coming on I remind myself with a verbal prompt. This is me relaxed, this is what it feels like. Simply acknowledging these moments has helped me to sleep better, digest better, even think better. In fact, Relaxing makes everything better.

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This morning I went to a yoga class with my teacher and friend Louisa Sear. Her classes are hard. Not because there are complicated postures or sequences, more because she asks you to be in the pose with every fibre of your being. She instructs the class to hold the pose, fix the gaze and still the mind. Every pose is taught like this so that by the end of the class there is a sense of being cleansed from the inside out.

The ultimate agitation is our habitual need to identify with the moving miasma of the mind. Thoughts will always be there, including thoughts about diabetes, its up to each one of us as to whether we uptake that thought or not. Thoughts don’t have power. You do!

Understanding the triggers for relaxation and  fixing the gaze on that is a profound way to deal with the constant stress of living with diabetes. Instead of focusing on the tension you’re experiencing, mentally, emotionally or physically try and find somewhere in your body that is at ease. It could even just be your big toe. As soon as your mind goes there all the awareness and focus goes there too. When I do this, within seconds I’ve forgotten what the problem was.

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As I write this I’ve decided to take my own advice. There’s not much I can do about the external factors such as the choking smoke or annoyance with erratic levels. What I can do is take a full breath, be kind to myself and catch a relax.

See you tomorrow #NDAM #DiabetesAwarenessMonth

with great respect…

rachel

The number of tests?

“How many times do you test per day?” this was the question put to me this morning by the Accuchek Guide rep while I was trying to replace my meter. “About twenty,” I replied adding that my blood sugar can tend to be volatile. The rep murmured a sympathetic sound. But I wondered what she really thought.

I know what my Endo thinks. He’s mentioned to me on more than one occasion that I am obsessed with checking.  Do I really need to wake up throughout the night to check? Ummm…YES!  It’s not like I set an alarm or anything, I seem to naturally wake up between 1-3 times per night anyway so why not check?

Overnight lows are the worst. In the days before I had the whole diet thing mastered I’d wake up and have to eat at 2 am. Nothing worse than sitting by myself in the kitchen watching the clock tick over while I wait for my blood sugar to rise.

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And what about in the day? Do I really need to check every hour? I actually don’t check every hour, it depends on whether I’m insulin resistant or have had some sort of injection blunder. Most mornings I can go from breakfast to lunch without even checking. I know my liver is doing its thing, dumping some extra glycogen into my system so it’s rare for me to drop. It’s usually between 12-5 pm that I like to be vigilant. I can never seem to get my lunchtime bolus right, and then there might be some extra exercise thrown in the mix around 4 pm.

Checking vigilantly when you live with Type 1 Diabetes is a make or break situation. Especially if you can’t tell when your low. Its called hypo unawareness, it happens when you have too many lows and the body stops recognising the feeling of being low. Like my horrible hypo two weeks ago, before I knew it I’d dropped to 3.2 mmol. Scary!

It was also after that horrible hypo and sharing it here that some friends encouraged me to use a CGM (continuous glucose monitor). This is something I would love to have but sadly here in Australia there is no subsidy for someone like me. To be eligible for the Dexcom or Medtronic CGM you have to be hypo unaware and admitted to hospital more than once or under the age of 21.

The Freestyle libre flash glucose system is also on offer here, but this has no subsidy at all. I have written before on the blog about how much I love this product. Sleek, discreet and accurate using it has increased my peace of mind and saved my finger tips. I’ve attended  product launches and #dx2Melbourne and can honestly share the company, its ethos and care are palpable. I’ve even lobbied the government to make access affordable for people like me and had a small feature in the Noosa News. In spite of my passion and efforts, I still can’t justify spending $100 every fortnight.

But wait ho… my wonderful parents, after reading my blog, gave me the best early christmas gift ever! A 6 months supply of the freestyle libre. I am touched and grateful.

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Here I am ready to launch. So excited to have some time off from the drudgery of test strips and the ability to see whats actually happening minute by minute with the food I am eating, the insulin I am taking and the sleep I’m sleeping. I’ll probably put one in starting next week so stay tuned…

See you tomorrow #NDAM #DiabetesAwarenessMonth

with great respect…

rachel

The one truth that can’t be faked

I have been obsessed with Twitter since September. Growing up in the United States in a liberal democratic family means I have a keen interest in U.S. politics. The election in 2016 floored me and I have watched the steady decline of ‘the facts’ over the ensuing three years. Not that facts are all they’re cracked up to be. Think about it, as much as science claims a finding to be reality that same theory can also be disproved. Guaranteed change is a constant. That doesn’t mean we shouldn’t aim for justice and liberty and all those other principles though. It pains me to see so much division, hatred and frustration emerging in a country where I was taught that no matter what your circumstances you could achieve the fulfilment of your dreams.

In a new paradigm of ‘alternative facts’ it’s hard to know what to believe, who to trust and what’s real. With all the fake news out there I’d like to note there’s one truth that can’t be faked.

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Diabetes.

Diabetes is a fact. Pancreatic beta cells have tanked. Insulin is required. Life is on a knife’s edge.

I can remember thinking early on after my diagnosis that there must have been a mistake. Maybe the lab messed up my blood tests. I wasn’t the type to have this disease and I was so healthy. A few health care providers even corroborated my theory. Even as late as 2008 some practitioners in Australia didn’t know that out of the 40,000 people diagnosed each year with type 1 diabetes, 50% are adult onset.

Fact: “According to the ADA, 1.25 million Americans have this disorder. This is about 5 percent of all diagnosed cases. The ADA estimates that 40,000 people receive a type 1 diagnosis each year in the United States.” Source: Healthline

Swallowing this fact has been a total reality check. Coming out of denial changed everything.

When it comes to chronic health issues especially ones that are invisible it’s hard for people to validate or understand our struggles. Keep in mind it’s not up to anybody else to verify what we are going through. Empathy and compassion is a powerful ally but in the end when the bugger’s hunkered down and immovable. What to do?

Flush out the tiger!

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It’s only through coming out and spreading awareness that truth can come to light.
It’s why I’ve been posting relentlessly here and all over social media. Plus writing about diabetes is therapeutic. It gives a voice to my inner world.

It’s also how I feel about the state of the union at the moment. Lets get it all out in the open. Let’s get to the bottom of this whole debacle. Let’s see the naked truth.

Once you know the truth about anything you’re free.

See you tomorrow #NDAM #DiabetesAwarenessMonth

with great respect…

rachel

Diabetes is an opportunity

It’s burning in the hills behind the town where I live in Australia. I am grateful not to have to evacuate but am concerned for those who do. The entire valley all the way to the beach is in a blanket of smoke. It’s hard to breathe. We just went to the beach for some relief but there was none. It was strange to see people out and about in cafe’s and shops as per normal. Apparently it’s only going to get worse. So many more friends are leaving their homes to be safe. It’s heartbreaking.

I feel this way about Diabetes too. Even though I live with it myself I feel for every single person who lives with this condition. It’s heartbreaking when anyone is diagnosed. I know all too well the challenges ahead. Every day can feels like Russian roulette. It’s a massive learning curve and you can’t get away from it.

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In spite of all the feelings that come up after diagnosis I also see diabetes as an opportunity to live differently. Instead of taking things for granted I wake up each day grateful to be alive, I’m learning through yoga and other modalities to regulate my nervous system, to react less to the stress of variable blood sugar levels. My diet is refined and I maintain an active life. This kind of approach takes focus and sustained effort and there are plenty of times where I feel frustrated and defeated.  But I try not to let my down days take over. I have always been an enthusiastic participant in life.

Today as the smoke chokes the air around us I think about all the people all over the world in crisis. How do we rise above, stay resilient and not give up in the face of uncertainty? How can we make a difference in spite of circumstances beyond our control? I draw strength from a simple Ayurvedic principle.

You can’t fight fire with fire. The softness of water is what douses the flame.

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The softness of water is about slowing down, tuning in and calmly moving forward. Flowing with change rather than pushing against it. Connecting with water is about dispersion and delegation. In the face of disaster it’s coming together in community and supporting each other. If we all share the burden we’re stronger together.

It’s the same with diabetes. When I reach out into the diabetes online community I find like minded friends managing their health in myriad ways. All of this forms my pool of inspiration. Even better is going to a support group or event where we all meet and share. I’ve learned more about my condition from these brief in person events than I have from my doctors and diabetes educators.

Knowing there is a community out there to answer a question, share a technique, help me find the best product or device is priceless. Before diabetes I would never have outsourced, researched or informed myself in this way. Diabetes has literally inspired a whole new me. My mission for diabetes awareness month is to share from the heart how diabetes affects me personally but its also about sharing how yoga is an incredible balm.

In this very difficult time, no matter what the struggle, it is my prayer that the varied practices and teachings of yoga become an important part of the healing journey.

More on that tomorrow…  #NDAM, #DiabetesAwarenessMonth

with great respect…

rachel

7 Things or thereabouts

There are a lot of things that influence blood sugar.  42 to be exact, according to Adam Brown from diatribe.org . If you’re keen to know what those are you can check out his handy chart here.

In the spirit of Diabetes Awareness Month and to share more about what its like to live with diabetes, I’ve put together my own short list based on personal trial and error. For those who don’t have diabetes and are just coming along for the ride, your blood sugar levels might also be influenced by these ‘things’ the only difference between you and someone with diabetes is. When your blood sugar rises your pancreas produces insulin to lower your blood sugar level, mine doesn’t. So unless I inject insulin or do something else to lower my level like exercise, I can’t just kick back and let my body do the work. When blood sugar levels go low in a non-diabetic , the liver kicks in with a drip feed of glycogen, to bring them back to homeostasis. My liver kicks in too, but as there is no insulin to meet the liver dump my blood sugar goes up again, hence the need for more insulin and round and round I go. Fun, fun fun…NOT!

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So here’s my list in no particular order.

  1. The Sun. Every time I lie in the sun for more than 20 minutes, I have higher levels for 24-48 hours afterwards. Apparently its the oxidative stress. It’s a double edged sword because if I avoid the sun I don’t get enough Vitamin D. I’ve worked out that if I limit exposure to 15-20 min and only sunbathe every two days I stay in range.
  2. High Fat Foods. I absolutely love my avocados and olive oil. I also love Haloumi and Feta cheese. My blood sugar however is very fussy when it comes to what I eat when. I’ve learned to avoid fatty dairy products before bed because I go high over  night and for 24 hours after. Avocados are a little more friendly, they actually help me keep my blood sugar from tanking while I sleep. So I load up on a hefty avocado with my dinner. But sometimes it backfires and I am still high when I wake up. I’m still trying to work out how to dose for fat. I feel like if I could figure it out I’d eat pizza again.
  3. Not enough sleep affects everything. Sleeping less than 7 hours a night for me definitely messes with my levels. I wake up about 1-2 times a night too so not sure what would happen to my levels if I was able to sleep through the night. I’d probably have lower levels in general.
  4.  A Daily Walk can either reduce my blood sugar level, which can be a bonus when I’m high, or raise my blood sugar level which is not ideal. When I walk, for how long and at what pace is also a factor. Walking directly uses the thigh muscles which burn glucose for fuel. It’s suggested that when levels are higher, or you’ve had a carb heavy meal, a walk will help insulin to work more effectively and reduce blood sugar. In my case a long walk (over an hour) on flat terrain  raises my blood sugar whereas a short 20 minutes hike up and down hills reduces my levels.
  5. Cleaning definitely drops my blood sugar in spades. All I have to do is look at the vacuum and I’m low. No joke!
  6. Travel. This is also very specific to the type of travel. When we travel by car anywhere over long distances I have lows. When we fly I usually have lows and then struggle with a stubborn high when we land. Jet lag is included in travel and wreaks havoc.
  7. Any kind of stressor like unexpected news, seeing a snake on the path, (that  happened yesterday) a loud noise, change in routine, fears, emotions, frustrations. So that covers the gamut right? All of this always gives me higher levels. Especially emotional outbursts.

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The one thing that doesn’t affect my levels is my yoga practice. That includes postural yoga, breathing and meditation as well as adhering to an ayurvedic daily regime. No matter how often, or how intense the practice my levels stay steady. In fact they flat line. That’s why I personally use yoga as my goto when I’m getting stressed out about my blood sugar levels. It’s like pushing the reset button.

It may not lower a stubborn high or fix a scary low, but it will calm me down enough to handle it.

See you tomorrow

with great respect…

rachel

I have diabetes, so what

Today ‘diabetes’ was the big topic of conversation amongst everyone I spent time with. I love how friends are curious about how I manage my daily life with this condition. I enjoy clarifying the differences between type 1 and type 2 diabetes, why we take insulin or sugar and the ins and outs of daily management. There are many diabetes myths out there, like people with diabetes can’t have sugar, or we take insulin for every situation, whether low or high, or that our diets caused our diabetes.

Diabetes is so much more complex and mysterious than that. It’s a bit like trying to put a square peg in a round hole. What I deal with in my iteration of diabetes is different to every other person with diabetes. That’s what makes it both frustrating and predictable. Living with diabetes means you can rely on its uncertainty.

And don’t get me started on how each person living with diabetes relates to their condition emotionally and mentally. In a recent conversation, a friend with type 2 diabetes stressed how exhausting it felt having to stay so vigilant with daily blood tests and visits to the doctor. In the end her way of dealing with it was to say, “I have diabetes, so what.”

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Listening to her take on diabetes made me reflect on my own approach. I could completely understand her position. Taking anything so seriously that it restricts your life can make you more unwell.

This is where I segway into my personal approach to management. It’s definitely the serious approach, where fear of complications such as loss of vision, amputation, kidney damage,and neuropathy give me the discipline and impetus for strict control. I’ve used my body my whole life to express myself through dance and yoga. The body being my joy meter. I remember thinking as a teenager that if I couldn’t walk, or dance I didn’t know how I’d cope. I feel the same way now as an avid yoga practitioner. I see the body as a powerful tool for health and wellbeing. If you can open, stretch and strengthen the body you can directly affect how you deal with any physical , mental or emotional stressor.

Luckily the daily discipline required of a dancer and yogi has its benefits, I utilise it  to be comfortable with eating the same kinds of foods at every meal, taking approximately the same amount of insulin, walking at a specific time each day, checking my blood sugar often and using yoga and meditation to mange my mindset. When I veer from my daily routine it takes days to catch up. It’s hard for me to experiment and try new approaches even when I know those changes would benefit me. I don’t want to beat myself up about my approach though… I’m fine with it. As one of my diabuddy’s once said,  “You do diabetes your way and if it ain’t broke, don’t fix it.”

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Walking with my friend today we talked about how it feels when I see a positive number on my glucometer or I know I’m doing good time in range. ” Do you feel like you can take a moment to soak in the tone of that feeling? In other words stop and feel how good it feels to know your managing well? ” I absolutely loved the way she put this. If I can acknowledge the good feelings, really soak them in then perhaps those more challenging moments i.e low or high blood sugar freakouts, will be less stressful. I like the idea that even something as stressful as diabetes gives me the opportunity to embrace those feel good vibes and to heal my nervous system.

A nice way to acknowledge that even though I have diabetes, so what.

See you tomorrow

with great respect…

rachel

It’s not up to me

Setting myself the task to write something every day for 30 days about diabetes to spread diabetes awareness is definitely daunting. I live with diabetes for 365 days a year and deal with it 24/7 so it should be easy to articulate that right? In reality the way I deal with diabetes is deeply private.

After spending 6 years ignoring it and then spending 4 years shouting about it via writing a book and being a fierce advocate through social media, it’s been interesting to spend this past year taking a break from the need to externalise my experience.

In 2019 I set a goal to lower my Hba1c, heal some of my underlying digestion issues and be brave when it comes to taking Insulin. I started 2019 using the Diabetic Health Journal, created by yogi and  diabetes health coach Lauren Bongiorno, with incredible results. Writing down daily goals, things I was grateful for and staying accountable made a big difference. My Hba1c went from 6% to 5.6 % in 6 months. If you’re not sure what that means it’s like dropping your cholesterol levels or blood pressure. Moving it from a pass to a win.

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I also went into hyper drive with my digestion, adding different supplements, bone broth and more variety into my daily meals. I worked on stored trauma with network spinal analysis and neuroimmunology sessions. Finally I made sure to keep up a daily walk and my twice daily yoga practice.

Making a concerted effort to shift some deep seated patterns has been an interesting process. I didn’t necessarily make great strides or have major revelations, instead I settled more into accepting what is.

“What is” might not be what I want but if I can accept it that’s a pretty good place to be. It’s how I dealt with diagnosis after fighting it for so long and pretty much how I manage my finicky digestion and volatile blood sugars and everything else that comes my way.

My latest go to phrase for everything is, ” It’s not up to me” That’s not about not doing everything I can to stay balanced. It’s about understanding that I don’t know the recipe of creation.  Letting go of needing to know, enjoying the gifts I’ve been given and trusting that whatever comes is perfect, goes a long way in helping me manage my condition.

I never expected to be diagnosed with diabetes but now that I have been I can honestly share it’s a blessing in disguise.

More on that tomorrow  #NDAM #DiabetesAwarenessMonth

With great respect…

rachel

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It’s here! diabetes awareness month

Diabetes! The one word in the english dictionary I never really wanted to focus on. I can remember the day I was introduced to the word by my high school girlfriend. She wore a medical bracelet around her wrist and ate sugar free candy. She told me it wasn’t much fun having it, but little else. It wasn’t until my own diagnosis, thirty years later that I understood the gravity of the burden she carried. Living with diabetes isn’t like living with a slightly annoying flatmate. It’s a 24/7 alarm bell that never stops ringing.

After diagnosis I tried to ignore it, big mistake! For me ignorance has meant nerve damage and digestive issues that don’t abate. But I’m not bitter. I’m grateful.

This month is #DiabetesAwarenessMonth. I’ll be posting every day sharing how yoga and mindset has helped me to navigate this journey.  I’m not sure how I’ll fare, it’s a big task but I’m going to give it a shot (no pun intended).

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So why should everybody know about Diabetes?

Well for starters 425 million people worldwide have the condition. That’s a lot of people. And that’s not counting those with undiagnosed or misdiagnosed type 1 and type 2. Diabetes is one of the fastest growing epidemics in the world. It’s also a disease with no known cause or cure and with ridiculously high priced medication in a country, like the US.  Managing diabetes also has no set treatment rules. I.e Insulin is not a cure! It’s like managing Jello. There’s a whole lotta wobbling going on.

Lately I haven’t been waving my diabetes flag here on the blog or elsewhere. For personal reasons I needed to jump off the bandwagon for a while. I worked pretty hard for most of the year on getting my numbers in range. For non diabetes friends, that means I’ve worked towards having normal in range blood glucose levels. When I achieved my goal halfway through the year I took a writing break. It’s been a good exercise for me in looking at the topics which really matter to me. It’s also given me a chance to step back from all things diabetes and just be.

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Whether you know about diabetes, live with diabetes or know absolutely nada being is seriously cool. Being means being okay with the ups and downs. Being is all about taking each day as it comes. Without doing anything being is always happening anyway. So being conscious of being takes it to a whole new level.

After quite a lot of being…I’m feeling like doing again…Phew!

I hope you’ll join me this month here and on my social media channels. Do comment below if you’d like me to post about something specific like what postures I choose to do, what I eat to manage my levels or anything else.

See you tomorrow!

with great respect

rachel

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To clean or not to clean

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So, this I found out is a thing… A cleaning hypo. I thought it was just me. Not long after picking up a mop, running the vacuum cleaner or even just sorting and tidying my closet I get the tell-tale signs. Skin crawling, thoughts scrambling, confusion and an overwhelming sense of fatigue.  Doesn’t everybody feel like that when they clean? Apparently not!

I’ve got friends who tell me they get high on the buzz of a hoover and the sweet smell of lemon floor wax and don’t get me started on how Marie Kondo and the Konmari craze has taken over everybody’s households.

But seriously…having to stop and drop a glucose tab in the middle of my cleaning foray is super inconvenient. Like who wants a low when your packing and tidying for a trip away? Or worse at the storage unit when you’re supposed to be a helpful hand to your husband?

It wasn’t until I happened to see my diabuddy Christel Oerum’s post about having to treat a hypo in the middle of vacuum session that I realised, this happens to everyone. According to Christel, the reason why vacuuming affects blood sugar so much is that it’s basically steady state cardio. The heart rate comes up a little and you end up moving around quite a bit even if you have a small place. She suggests making sure not to have too much insulin on board ( IOB) before cleaning.

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My problem is that I’m in such a routine with my insulin dosing that I have trouble planning ahead. I.e cleaning in the morning when I have dawn phenomenon would be better than an after lunch declutter session.

The other thing I’ve noticed with a cleaning hypo is it lasts for hours. No other form of exercise seems to do that for me.  If I was keen to clean I could actually use that as a great form of blood glucose control.

Move over Yoga, lets scrub, mop and vacuum the sh..t out of everything right?

Fuggedaboudit! I’d rather roll out my yoga mat, do a leisurely sun salutation, cross my legs and meditate.

Wishing everyone a super wonderful start to September

with great respect…

rachel

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