My personal diagnosis story started long before my actual diagnosis. It began with a sense that something wasn’t quite right with my body. I had always been a frequent visitor to the toilet and had a tendency to be on the thin side. I told people I had an overactive bladder and yoga kept me fit. It took a total exhaustive collapse for me to sit up and take notice. But even then I refused to take action. It was my husband who took me to the doctor and suggested I have some blood tests.
My doctor at diagnosis didn’t have a clue. He shouted the word “diabetes” at me and shoved a few pamphlets in my direction. I remember leaving his office dumbstruck. How could this be happening? Was he for real?
Luckily I was able to see an endocrinologist a few days later. He looked over all my blood work and scratched his head. I don’t think he’d ever met someone in their 40’s as healthy as me with any kind of diabetes. He advised me to get a glucometer and to keep testing. We were to keep on eye on things before drawing conclusions.
With a stricter diet and lots of yoga, I managed to keep my levels in check for at least a year. But I wasn’t out of the woods. A GAD antibody test revealed Islet cell antibodies. That meant the source of my diabetes was autoimmune. I remember asking my doctor if I could reverse it. The slow nod of his head said it all. “As long as your levels stay in range you won’t need medication. But eventually, you will.”
I played the waiting game for 6 more years… waiting for the symptoms to worsen, for the levels to rise. With every blood test, I battled to get my levels down. Then I burnt out. I stopped going to the doctor telling myself I had everything under control.
In 2014, I broke down. I started peeing several times a night, I was down to 46 kilos, I’d stopped eating and increased my exercise. Nothing worked but I didn’t give up. As long as I had energy I assumed diabetes hadn’t got me.
Man, was I wrong.
Diabetes had held me in its grip from day one. If only I’d known sooner the ramifications of delaying insulin. How I might have preserved more beta cells. If only I’d understood how much damage high blood sugar causes to the nervous system, cells, and organs. Then I wouldn’t have mild neuropathy or such trouble with my digestion.
It took a crisis to get my attention and a community to bring me back to vibrant health. The moment I started insulin was the day my life changed for the better. I found a thriving community of people living with Type 1 in the blogosphere and on Facebook, Instagram, and Twitter. I reached out, asked questions and informed myself about my condition. As I grew in knowledge, I realized that with better information, more resources and awareness around type 1 diabetes I might have taken action sooner.
My biggest message for anyone out there is to be aware of the 4 T’s ( Tired, Thirsty, Thinner and Toilet) which can affect anyone with any type of diabetes. If you live with type 2 catching these symptoms early is key. Some people living with type 2 can go up to 7 years before detection. Early detection of type 1 saves lives.
I wish I could say I believe there is a cure around the corner. I am hopeful for sure. but hoping doesn’t change the present moment. For now, cure or no cure. I live with diabetes. I have come to terms with my diagnosis and gone on to live my best, happiest most positive life.
I tell myself every day. I am lucky to be alive!
with great respect….